Dublin Core
Title
ME/CFS – the Severely and Very Severely Affected
Subject
Healthcare
Description
Manuscripts in this monograph are sorted into five categories: 1. Case Reports: a
description of living as a bedridden patient; structured interviews with severely affected
ME/CFS patients; how past events contribute to severe ME/CFS; a comparison of
moderately ill, severely ill, and very severely ill; case reports of ME/CFS in children. 2. A
healthcare provider’s view of managing ME/CFS patients. 3. Characterization of the
Severely and Very Severely Affected: (1) the most troubling symptoms; (2) disease severity
diminishes capacity for exercise, (3) operationalized definitions of the severely ill and very
severely ill; (4) the usefulness of a modified Korean Chalder Fatigue Scale Questionnaire;
(5) cardiac dimensions and function in patients; (6) an easier tilt test; and (7) review of
sleep studies. 4. Progress in Diagnosis and Treatment: (1) objective measures for grading
ME/CFS; (2) a sitting tilt test for orthostatic intolerance; (3) the benefits of IVIgG; (4) risks
and protective factors in suicidality; (5) malnutrition and overcoming it; (7) partnerships
between patients, caregivers, and providers, and the use of technology; (8) a holistic
model of care, “Compassion in Practice; and (9) the effects of suffering, utilizing a fourphase model. 5. Impact of the Disease: (1) a historical perspective; (2) the impact of
ME/CFS on psychosocial dynamics; (3) the educational needs of school-aged; and (4) the
economic impact of ME/CFS
description of living as a bedridden patient; structured interviews with severely affected
ME/CFS patients; how past events contribute to severe ME/CFS; a comparison of
moderately ill, severely ill, and very severely ill; case reports of ME/CFS in children. 2. A
healthcare provider’s view of managing ME/CFS patients. 3. Characterization of the
Severely and Very Severely Affected: (1) the most troubling symptoms; (2) disease severity
diminishes capacity for exercise, (3) operationalized definitions of the severely ill and very
severely ill; (4) the usefulness of a modified Korean Chalder Fatigue Scale Questionnaire;
(5) cardiac dimensions and function in patients; (6) an easier tilt test; and (7) review of
sleep studies. 4. Progress in Diagnosis and Treatment: (1) objective measures for grading
ME/CFS; (2) a sitting tilt test for orthostatic intolerance; (3) the benefits of IVIgG; (4) risks
and protective factors in suicidality; (5) malnutrition and overcoming it; (7) partnerships
between patients, caregivers, and providers, and the use of technology; (8) a holistic
model of care, “Compassion in Practice; and (9) the effects of suffering, utilizing a fourphase model. 5. Impact of the Disease: (1) a historical perspective; (2) the impact of
ME/CFS on psychosocial dynamics; (3) the educational needs of school-aged; and (4) the
economic impact of ME/CFS
Creator
Kenneth J. Friedman (Ed)
Lucinda Bateman (Ed)
Kenny Leo De Meirleir (Ed)
Lucinda Bateman (Ed)
Kenny Leo De Meirleir (Ed)
Source
https://www.mdpi.com/journal/healthcare/special issues/me cfs.issue
Publisher
MDPI
St. Alban-Anlage 66
4052 Basel, Switzerland
St. Alban-Anlage 66
4052 Basel, Switzerland
Date
2023
Contributor
J®F
Rights
The book as a whole is distributed by MDPI under the terms
and conditions of the Creative Commons Attribution-NonCommercial-NoDerivs (CC BY-NC-ND)
license.
and conditions of the Creative Commons Attribution-NonCommercial-NoDerivs (CC BY-NC-ND)
license.
Format
Pdf
Language
English
Type
Textbooks
Identifier
ISBN 978-3-0365-9360-9 (Hbk)
ISBN 978-3-0365-9361-6 (PDF)
doi.org/10.3390/books978-3-0365-9361-6
ISBN 978-3-0365-9361-6 (PDF)
doi.org/10.3390/books978-3-0365-9361-6